Going home 13\11\19

Had to stay in an extra night which was frustrating. This was partly because I had a couple of minor setbacks, but also because the day nursing staff lost my prescription list for 4 hours which delayed me continuing my fluids for 4 hours! It was very frustrating at the time but I’m over it now and definitely going home today.Both cannulas are out so I’m literally just waiting to be discharged.


The minor setbacks were related to a rise in my temperature and a major reduction in me passing urine. My temperature rose to 38.1 so I was put straight on to an antibiotic drip and then another drip of something to make me pee more; and my goodness, it certainly worked!

Also the luxury of a private double room was short lived yesterday; never have I been more grateful for the invention of headphones. I had to have a midnight snack last night because I was starving. The nurse got me a turkey sandwich – it was so good. I must say I really like hospital food, no cooking and waited on – brilliant.

As for how I feel, just tired from lack of sleep and hungry lol. I think the hunger is due to the high dose of steroids that I’ve had.
Another MAJOR setback; and this was my own fault! I sent my overnight bag home with my dad last night. Now I’ve had to shower without my nice toiletries and I’ve got no leggings to wear; I will be walking out of hospital in a pair of donated hospital pyjama bottoms. But I’m not bothered; I’m going home!


Next back in to hospital on Saturday 16th to pick up the injections to release my stem cells, which I will administer at home myself before coming back in on 20th to harvest the Stem cells.

So bye for now X

The lovely hospital pj bottoms I will be going home in 😂😂😂

Published by mymsstemcelljourney

29 year old ready to undertake HSCT Wife and Mummy to two boys - 2 years old and 8 months

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