So, been at home the past couple of days.
Nothing major to update. I have been feeling pretty ok other than very tired. My scalp has been a bit itchy at times but not too bad so far. No sign of my hair falling out yet but it is early days.
We have made extra efforts to guard against the risk of infection but that isn’t easy when you’ve got 2 young children and a dog. Molly (the dog) stayed at Mum and Dad’s for the first couple of days but she’s back now. Extra use of hand sanitiser etc.
Max, my youngest, who is 6 months old also stayed overnight with Mum and Dad until the weekend so Jay could go back to work without leaving me with 2 children to get ready in the mornings. Archie was in nursery as well so that made things a bit easier.
Between Mum, Dad and Jay, they have rotated child care so that I’ve been with the children but not had to do much so that has been great.
I have tried to eat as healthily as possible; Mum doesn’t give me much choice in this matter! Archie thinks he’s going to a cafe when we go there but it’s definitely not your homely afternoon tea type of cafe. There are no delicious aromas of freshly baked cakes like you get in ‘normal’ grandma’s homes; but the smell of roasting vegetables is mouthwatering – NOT!
I felt really tired on Friday but I had booked a session for Max and Archie to do Christmas hand print baubles and I really wanted to go. Mum was going to take them but at the last minute I forced myself to get ready and go with them. I was so glad I did because going out really helped and we all had a great time. In the evening I went to a Temple Spa party as well. I avoided using any of the products because of the risk of infection. I was pretty exhausted by the end of it and was ready for bed but it was nice to get out. Being cooped up in the house all day isn’t good for my sanity.
Yesterday I had to go back to the hospital to collect my GCSF injections and have a routine blood test. The injections are to help release stem cells in to my blood stream ready for harvest on Wednesday. Jay learnt how to stab me with a needle, which I’m sure he secretly loved! Going to the hospital at the weekend is the best; easy to park, didn’t have to wait long for the lift and the day ward was very quiet. We were only there for half an hour at the most – and that included a cheeky stop at the cafe to grab a hot chocolate – sshh… don’t tell Mum!
I have been told these injections could have side affects which could cause flu like symptoms, so will watch out for those.
So for now I will continue with day to day life 🙂
X
My MS Stem Cell Journey 