Back to the hospital today for routine blood tests to check white blood count. I was thinking it would be like Saturday; in and out, but oh no, not this time! First the nurse asked if I needed to wait to see the doctor after I’d had my blood test I said not as far as I’m aware. So off I toddled for my bloods to be taken only to be told I had to wait for the results. Great! Jay was hoping to get back to work – unlucky.
Half an hour wait white blood count came back. Neutrophils are 0.5 which means you have to say in as you are at greater risk of infection- open the flood gates – couldn’t stop crying as I was not prepared for that!
On Saturday my white blood count was 3.5. Anything below 1 and the protocol is to keep me in hospital to be safe. Professor Snowdon prescribed a course of IV anti biotics and the nursing team were ringing the wards to find me a bed. Meanwhile Jay rushed off home to pack me a bag. My mum had both children and I was worrying that I hadn’t packed their outfits in day order.
Finally on a ward. Got taken for a chest X-ray and was told the doctor would come and see me later. Hooked up to more IV antibiotics. I asked how many courses of this have been prescribed; I like to know what’s going on, how long I’m likely to be in for. Nurses struggled to give me an answer and stated the doctor will be round tomorrow now as he has gone home already (5:30pm). Nurse said as I have an infection I will be on antibiotics throughout my stay. I stated I have not been told I have an infection and that my temperature was 36.1 degrees.
Communication and information isnt great here, and neither is my patience!
Ok, rant over for now. Hopefully tomorrow will be a better day!
My MS Stem Cell Journey 