Bye Bye Babies. Day -5 (2/1/2020)

Cases all packed yesterday. Children stayed at my Mum’s last night because we had a 6:30am start today.

Saying goodbye to the kids was hard for me, however when I told Archie I was going in to hospital he wasn’t bothered: ‘ok’ he said. ‘I stay at Grandmas’, and ran off to continue playing. I think everyone was crying apart from the kids….. and Jay!!

Today is day minus 5 which means 5 days before transplant. Day 1 is stem cell transplant day. Arrived at the hospital day ward for 7.30am. Was taken down to X-ray department and into what looked like a mini theatre for the Hickman line to be fitted.

I was pretty nervous for this procedure however it wasn’t too bad. I did feel like the doctor stabbed me in the neck when he first numbed the area but after that I didn’t feel any pain, just pressure.

Back to the ward to start the treatment and wait for a bed in a specialised room. My mother did my head in by nagging and checking all the protocols. Then Jay came and the amount of sympathy I got was zero. However, he wasn’t happy with the state of my dressing and he told the nurse it needed changing and in the end got it sorted and cleaned up properly.

I’m literally hooked up to lines of treatment from 12pm today for the next 5 days until my stem cells go back in. My blood pressure, pulse and temperature is monitored every hour. They start to panic if my temperature rises above 37.5. So far it’s gone to 38.5 but came down again.

Finally got my room at 8pm. I Should have had it first thing this morning but better late than never. It feels a little bit like a mini travel lodge room. It has a wardrobe, en-suite and a fridge. Now time to unpack and set up Netflix. I have a feeling that I won’t be getting much sleep. Also Jay wants to go home to bed! He’s hard done by isn’t he! He’s only been here 8 hours.

So less see how much sleep I get.

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