Category Archives: Uncategorized

It’s my ‘stem cell birthday’! 25th February 2020 was when my stem cells were transplanted following the chemo. And I left hospital on 9th March 2020. Well what can i say, it’s been a different year to what we were expecting. When I left hospital the pandemic had already started. I remember being in myContinue reading “365 day’s SHIELDING”

Day 38 4 weeks in isolation after being discharged; just another 67000 weeks to go! (well it feels like that many anyway)! To be honest, after I’ve done the 12 weeks the government has stated I have to do as I am extremely high risk, I don’t know how things will work out. Will everythingContinue reading “Warning. Scary Photo Alert!”

Day +13 discharged from hospital I’ve spent 19 days in hospital and I have finally been discharged! On Monday when Professor Snowden came to tell me I could go home I was over the moon. To be honest it was quicker than I thought as we were expecting about 21 days or more in hospital.Continue reading “Home At Last”

Day +9 Got my throat swab results back today – they were taken on Tuesday because I had developed a cough. Turns out I have the Coronavirus! Don’t get your knickers in a twist; corona virus is an umbrella term for basicallly the common cold. If you remember, back in January I also tested positiveContinue reading “Coronavirus Strikes Again”

Over the past few days my energy levels have gone up and I can get a shower without rushing to sit down afterwards. Don’t get me wrong, I still get tired quickly but it seems to be an improvement. On Monday afternoon the nurse came in and told me that my platelets were here readyContinue reading “Exciting Excursion”

Day +6 All blood counts have dropped. I am now neutropenic, which means I am at high risk of infections. My platelets have dropped but not to the point that I need a blood transfusion so I’m just hoping they don’t drop much further. Apparently it’s not uncommon to need a transfusion so I’ll justContinue reading “The Drip Trolley – My Best Friend”

The chemo and ATG have now officially finished and should have wiped out my immune system – or they are still in the process of doing so. I am just waiting and checking daily for my neutrophil count to get down to zero. Today I received 8 million of my own stem cells back toContinue reading “Day 0 – Stem Cell Birthday”

Nothing exciting to report over the last three days really. It’s been a very sleepless and busy few days. I am hooked up to medication and fluids literally 24/7. I have a continuous transfusion of Mesna which helps protect all my organs from the chemo and ATG, I have a drug intermittently to make sureContinue reading “Day -4”

Let’s try again. Stage 2 day -5 Well, here I am. Back again to restart the treatment. I spent the last few days packing my bags, holding my babies and getting as ready as I could. I’ve waited until the treatment is well underway before I dared post this blog – it does seem likeContinue reading “Dejavu”

You lot must be as sick of reading these as I am of writing them. So I will keep it short but I just wanted to keep you updated. So the date I had scheduled to restart the transplant stage 2 was 6th February. Unfortunately this has now been cancelled again as I had toContinue reading “Yet Another Set Back”