Category Archives: Uncategorized

Home time finally after 8 days since being re-admitted. I was only re-admitted due to blood level being too low and being at risk of infection; it seems I was at more risk of infection in hospital! Unluckily, the infection I picked up (burkholderia) was rare and quite hard to treat but after three differentContinue reading “At Last – Going Home”

So an update over the eventful last couple of days. Friday 10th January – neutrophil count 0.18Spent all day Friday in my room as expected nothing to report on that day. Saturday 11th January – neutrophil count 0.04Woke up feeling fine; had a shower, breakfast etc and then wham! All of a sudden I wasContinue reading “Fever strikes”

Bit of an update over the last few days. I got to go home on 7/1/20 which was lovely to get home and see my children. I still have the Hickman line in so I was very cautious of that as it’s still held in with stitches and I have two wires dangling. Also IContinue reading “Isolation again”

Today they are giving me back some of my stem cell to help me recover from the flu and chemo this time. Luckily when my stem cells were removed they got a lot more than needed so we are able to use some ‘extra’ ones and save the rest for the main transplant. Minor inconvenienceContinue reading “Mini Stem Cell Birthday 6/1/20”

Not much to update. All treatment has now stopped completely including the fluids to wash out the chemo and ATG. I’m on Tammy flu which is just crazy because yes they are telling me I have Influenza A but I have no symptoms of flu! I have a small cough but other than that feelContinue reading “The End of the start 4/1/20”

Didn’t sleep too bad last night – managed to get a few broken hours. Had a dose of chemo during the night and some anti sickness and fluids. The nurses have to monitor my fluid intake and output again. I started the 10 hour ATG drug at 12pm again today. This drug is the oneContinue reading “Day -4 Flu Strikes!”

Cases all packed yesterday. Children stayed at my Mum’s last night because we had a 6:30am start today. Saying goodbye to the kids was hard for me, however when I told Archie I was going in to hospital he wasn’t bothered: ‘ok’ he said. ‘I stay at Grandmas’, and ran off to continue playing. IContinue reading “Bye Bye Babies. Day -5 (2/1/2020)”

Not much to report here over the last couple of weeks. After shaving my hair I started to wear the wig when leaving the house but it became very annoying whilst on my head and also looked stupid so I bought some nice ‘cancer caps’ and these are all I wear now. Of course IContinue reading “Too much Christmas Spirit”

Well after a week of my hair falling out, I decided to brave the shave… I was sick of it falling out anywhere and everywhere, blocking the plug holes and looking like there was a dead rat on my rug! So, last Friday I had it cut into a very short pixie style cut, butContinue reading ““What’s that on your head mummy?””

Been home a week now so thought I should give you an update on what’s been happing. Think it will be a short update to be honest. Think I’ve probably been doing too much since I got home from hospital. I was just enjoying the freedom of being out of hospital. I’ve been doing thingsContinue reading “29/11/19 Hair loss”