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Day two of stem cell harvestWoke up again at 6am for bloods to be done. The health care assistant who has done them the last few mornings is the best. Today I didn’t even feel the needle go in! Amazing. I have got a bit of a name for myself on the ward for notContinue reading “IM COMING HOME TODAY 22/11/19”

Had the phone call saying all systems go – I would be on the machine at some point today. So I made my mum straighten my hair otherwise definitely wouldn’t have been any photos taken.  They came at about 11.00am. I had an anti anxiety tablet (can’t remember what it was called) because I wasContinue reading “21/11/1 Stem Cell Harvest time”

Never have I been so happy to have pain, but first an update on yesterday (Wednesday). Yesterday was disappointing; couldn’t harvest the stem cells because even though my neutrophil count had started to rise, it wasn’t high enough to have made stem cell collection possible. But then, throughout the night I was having mild backContinue reading “Never have I been so happy to feel pain”

Too tired to write a blog today. Still in the hospital on the ward. I have been told I have an infection but they are unsure where. Being treated with IV antibiotics. Blood pressure, temperature and pulse are all ok. Mum visited today she brought fruit and a curry she had made. Dad visited laterContinue reading “19/11/19 Tired”

Back to the hospital today for routine blood tests to check white blood count. I was thinking it would be like Saturday; in and out, but oh no, not this time! First the nurse asked if I needed to wait to see the doctor after I’d had my blood test I said not as farContinue reading “18/11/19 – Opening the flood gates!”

So, been at home the past couple of days. Nothing major to update. I have been feeling pretty ok other than very tired.  My scalp has been a bit itchy at times but not too bad so far.  No sign of my hair falling out yet but it is early days. We have made extra efforts toContinue reading “17/11/19 7 days post harvest chemo”

Had to stay in an extra night which was frustrating. This was partly because I had a couple of minor setbacks, but also because the day nursing staff lost my prescription list for 4 hours which delayed me continuing my fluids for 4 hours! It was very frustrating at the time but I’m over itContinue reading “Going home 13\11\19”

Today I went to Sheffield Hallamshire hospital to start my HSCT journey. The chemotherapy that is given is cyclophosphamide which is used to suppress the immune system. Along with the hydration infusion for 27+ hours, I had a lot of anti sickness drugs and steroids. I had to stay in overnight whilst hooked up toContinue reading “Stage 1 -1ast day of chemo – 11/11/19”